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Living with Cardiomyopathy

Your healthcare provider will outline a treatment plan to help you live better with cardiomyopathy. This will stop your condition from getting worse and possibly causing serious problems for your heart and lungs. Follow your provider's instructions. You can also make some lifestyle changes that will help your heart.

Man standing on bathroom scale.
Weigh yourself daily and write down your results.

Follow your treatment plan

Visit your healthcare provider regularly. Talk about any problems you are having with your treatment plan. Be honest if you are not doing something your provider has suggested. He or she may be able to make some changes to help your plan work better for you. Not following your provider's advice could result in a serious or life-threatening complication.

Balance activity and rest

Having cardiomyopathy may mean you get tired more quickly because your heart doesn't work as well as it should. But this shouldn’t keep you from being active. In fact, being active may help you feel better. Talk with your healthcare provider about how much activity is right for you.

Take steps to help your heart

  • Stop smoking. Smoking damages your heart muscle and blood vessels. It also causes changes to your lungs that can make it harder to breathe and for your lungs to work. Smoking reduces the oxygen in your blood. Having less oxygen in your blood will make your heart work harder and beat faster. This can cause a heart attack if your heart can't handle this extra work. This kind of heart attack is known as an acute myocardial infarction (AMI).

  • Lose any extra weight. The more extra pounds you have, the harder your heart has to work to pump blood through your body. Extra weight can also raise your risk for high blood pressure and diabetes. These diseases can further damage your blood vessels and heart.

  • Don't drink alcohol. Drinking alcohol may make your cardiomyopathy worse. Alcohol breaks down the heart tissue. This affects how well your heart pumps. This can be very serious in people with alcoholism.

  • Eat less salt. Salt is the main source of sodium in our diet. Too much sodium can make the symptoms of cardiomyopathy worse. Salt causes your body to retain water. This extra fluid makes your heart work harder. Your healthcare provider may tell you to limit how much sodium you have to less than 1,500 mg a day. That’s about half a teaspoon of salt.

Keep track of your weight

Rapid weight gain may mean that you are retaining fluid. This is one of the signs of heart failure. Keeping track of your weight helps you notice this weight gain early. It can prevent further damage to your heart. To keep track of your weight:

  • Weigh yourself at the same time each morning, after you urinate. Wear the same thing each time. Write down your weight each day.

  • Don’t stop weighing yourself. If you forget one day, weigh again the next morning.

  • Call your healthcare provider if you gain more than 2 pounds in 1 day, more than 5 pounds in 1 week, or whatever weight gain you were told to report by your provider.

Call your healthcare provider

Call your healthcare provider if you: 

  • Faint or have dizzy spells

  • Notice new symptoms from your medicine

  • Have a new onset of coughing. This is especially true if the sputum is frothy or foamy.

  • Have trouble breathing, especially if it occurs while at rest or lying down. Or if you have trouble breathing during exercise or even while walking short distances.

  • Get tired faster

  • Begin urinating less often

  • Find that your feet or ankles swell more than normal. Or if you have swelling in your legs or belly. Or if the veins in your neck stick out more than normal. You may notice it is harder to get into your shoes or pants because of swelling and bloating.

  • Have tightness, pressure, or pain in your chest, arm, jaw, or back

Online Medical Reviewer: John Hanrahan MD
Online Medical Reviewer: Lu Cunningham RN BSN
Online Medical Reviewer: Steven Kang MD
Date Last Reviewed: 7/1/2019
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